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Post by lavonm on Sept 10, 2022 21:45:49 GMT
That and I tire easily as I found cleaning out the refrigerator earlier lol. Good grief! You just got out of rehab. Those kind of tasks can be done by the men while you supervise. Start with small tasks & not all at once. It'll take time for you to get your strength completely back.
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Post by ann1953 on Sept 10, 2022 21:59:15 GMT
OMG is all I can say. Happy to have you back. You were missed. Know my prayers continue.
Lol to your doctor retiring. The fridge cleaning would be me.
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Post by susan092907 on Sept 10, 2022 22:20:55 GMT
DotRen, Glad to hear you're home - best wishes for continued healing. And maybe wait a bit to house clean?!
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Post by bbbearsmom on Sept 10, 2022 23:02:35 GMT
DotRen, Thanks for the update. That is quite a saga. Sorry you had to go through so much. Good to hear you are home. Take care of yourself and go slow. What did Murray think of having you home?
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Post by itsrad on Sept 10, 2022 23:16:10 GMT
DotRen, so glad you are home and recuperating. Please take it easy - you've been through a lot!!!
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Dotren forgot her login lol
Guest
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Post by Dotren forgot her login lol on Sept 11, 2022 1:57:06 GMT
Murray has not left my side. He was excited but calm, I got all the Snuggles and kisses. Overall good day. Just took my 2bp meds, singulaire And Benadryl so I should be able to Sleep for a while. I got a little over tired earlier and Had a hard time standing to get in bed So i'll pay attention to that more.
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Post by ann1953 on Sept 11, 2022 11:26:30 GMT
Rest up Rene. Noting like those snuggles and kisses
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Post by DotRen on Sept 11, 2022 11:48:50 GMT
Thank you all, I can't begin to tell you how much you good thoughts mean to me.
I have outpatient physical therapy 3x a week starting Tuesday (evaluation). There are a few things I need to go over with them, just for my mental clarity (180 turn and things like that). Most things will come back naturally as I get stronger anyway.
First night home, slept great, achy this morning getting used to my bed again lol.
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Post by doordie50 on Sept 11, 2022 12:58:38 GMT
DotRen , Wow! I'm so happy to see you here and knowing you are home with your family at last. I hope you can get some rest and mental downtime soon. Lots of love and hugs!
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Post by sheryl4pointsplus on Sept 11, 2022 14:06:58 GMT
DotRen, so glad you're feeling better. returned to these forums and learned you were sick. Glad you're recovering.
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Post by DotRen on Sept 11, 2022 14:28:15 GMT
The blood pressure struggle is real. I took my meds at 7am, ate breakfast, had 2 cups of decent coffee (lol) at 9am felt off, 103/56 ... did some theraband exercises and got it back to 120/60 because there's no way I can chance standing up with it that low. I'm charting it all so I can show my doctor, will try to make an appointment later this week so we can work out a plan to titrate down the prednisone and work on the BP dosage so I don't get these lows so bad.
I'm on valsartan and carvedilol morning and evening.
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Post by linda72 on Sept 11, 2022 15:16:20 GMT
DotRen, thanks for the Wiki version of "RENE'S ILLNESS SAGA". What about the Sweet Syndrome diagnosis? Do they still think you had that?
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Post by ann1953 on Sept 11, 2022 15:21:06 GMT
DotRen, my prayers continue. You are wise to chart it all. (((hugs)))
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Post by DotRen on Sept 11, 2022 16:01:49 GMT
linda72, yes, the skin biopsy confirmed it. Later, much later lol, I'll need to get with a dermatologist to try and figure out if I have any other triggers other than the sulfa based things. I need to be off the prednisone at least a month before that will work, so it will probably be after the first of the year.
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Post by DebDoesWW on Sept 11, 2022 16:13:18 GMT
And that my friends is why I said " and the correct answer to what Rene actually had was 'D all of the above' " ππ€£
So nice to see you back Rene β€οΈ
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